Carers* play an essential role in the overall care provided by our staff to the people we support. They are the constant and consistent voice for those we care for throughout their journey with Elysium, from pre-admission assessments, during the admission, and are a vital part of any discharge planning. Carers can promote the rights of their loved ones and advocate on their behalf, supporting staff to better understand their wants, views and wishes. Carers can help loved ones navigate the complexities of a hospital admission or residential placement and can help in practical terms by supporting with benefits, and just by being there, they are a familiar face.
When service users* are placed a long way from home and family networks, having carers being able to visit and communicate on a regular basis can provide a welcome link to home, and a vital support in recovery. Carers can also influence care being delivered by providing feedback on services, making suggestions for improvements, and helping to raise awareness of issues when things are not going well.
Carers may often not recognise the role they play in shaping services, but it is important that Elysium recognise the valuable contribution they make in supporting their loved one’s recovery, and that they are considered very much a part of the team.
James Holloway – Elysium Healthcare Group Head of Safeguarding and Carers Lead
*We will refer to service users, residents, and clients (or anyone we provide services for) as service users and family, carers, and friends as simply carers.
Who is a carer?
As defined by NHS England, a carer is:
anyone, including children and adults who looks after a family member, partner or friend who needs help because of their illness, frailty, disability, a mental health problem or an addiction and cannot cope without their support. The care they give is unpaid.
When we refer to carers, this is inclusive of both adult and young carers. We use the term ‘carer’ in its broadest sense to include the most significant people in the life of those we support, including spouses, parents, family members, friends and young carers. The carer is not always the nearest relative.
It is important to acknowledge that some carers may not think of themselves as carers. It can also be difficult for carers to see their caring role as separate from the relationship they have with the person for whom they care.
This content aims to recognise the needs of carers and provide useful and important information to help them throughout their loved one’s journey. In addition, the objective is to empower carers to be involved in the provision of care and service development.
Each Elysium site will also have their own local information pack covering site-specific information:
· About the service
· Key terms and definitions
· Local contact information
· Support available
· Carer engagement opportunities e.g., carers’ forum or events
· Visiting the service
· Staying in contact by telephone and videoconferencing
· Site-specific policies e.g., smoking
· Local carers’ groups and resources
· Other important information
We provide information in other languages, Braille or British Sign Language (BSL) on request. If you are a Deaf family member or carer you can contact Elysium Healthcare using a BSL interpreter from the SignVideo link on our website.